i-Patient Support Sites
Patient Support Groups do just what they say: support. There are a tremendous amount of breast and prostate support groups, because they are common cancers, and many people are affected, and need the support that the internet supplies. And the support groups apply to almost any type of illness. A patient just needs to google, “Disease Support Group”, and will be lead, most likely, to many support websites.
According to Wiki….”n a support group, members provide each other with various types of help, usually nonprofessional and nonmaterial, for a particular shared, usually burdensome, characteristic. The help may take the form of providing and evaluating relevant information, relating personal experiences, listening to and accepting others’ experiences, providing sympathetic understanding and establishing social networks. A support group may also work to inform the public or engage in advocacy.”
Therefore, support groups, in today’s internet world can be a rich source for today’s patient. Healthcare information, medications, research, treatments can be compared, shared, evaluated. It may be in person,but can also exist is todays Web 2.0 world, in blogs, facebook, and twitter acounts, and even by email correspondence. Below are a few support organizations, but, if searching for one particular one, and cannot find it, simply google it, and you should be able to find it.
Ran across this site at a Tweetchat for #MedX in Sept 2013, and am glad I did. In their worlds….”Inspire builds online health and wellness communities for patients and caregivers, in partnership with national patient advocacy organizations, and helps life science organizations connect with these highly engaged populations.”
Support Site for Cancer Patients. See the below video, that explains what it is about
Patients create a home page, and blog about their medical problems, and find support in the community.
Good way for families in other parts of the country to update on patients condition, by setting up a private website, with patient updates, etc.
This is an online community for patients with chronic diseases to network with others. While not an app, this site does have a podcast series accessible on mobile devices.
Large amount of support groups, from Asthma to Thalassemia
Asthma/Allergies Support Groups
One of the leading rare and genetic disease patient advocacy organizations in the world. 1 in 10 people worldwide suffer from rare and genetic conditions
Rare and genetic diseases affect 1 in 10 Americans, 30 million people in the United States, and 350 million people globally.
-organization founded by “e-patient Dave”, a high tech computer specialist, who was diagnosed with Kidney Cancer, but, who recovered, in some part, due to his diligence with treatment options, education afforded by the internet. This organization encourages the patients to be actively involved in their healthcare.
Parents of Kids with Infectious Disease Support/Info Blog, bent on Education of Infectious Disease, aimed at Parent
-moderated by prominent patient advocate, Trisha Torrey
-a State of the Art Support Website; every disease should be so lucky to have such a complete supporting site
-work to make Healthcare transparent