The Power of Identification: Patient Blogs like Sara Riggare’s Parkinsonism Blog
by John Bennett MD: Editor
Identification can be a powerful tool, with almost anything. A person can more likely understand someone who has gone through the same experience.
A disease is such an experience. And with some diseases, it may engender isolation. Chronic diseases such as Parkinsonism is one. Most patients, and probably most doctors, such as myself, would not know the first signs,
or symptoms of Parkinsonism. It would have to be looked up, or one might just ask around. Or go to the doctor, who would listen, and not come to a conclusion, and advise to come back if those syptoms persist.
Or the patient may retreat into denial of anything happening. Until a point, when denial is no longer possible, and a visit to the doctor eventually leads to referrals, and a conclusion and diagnosis is reached.
The good news now is, once a diagnosis is reached, support can be found, such as a group for Parkinsonism, headed by a noted Parkinsonism patient from Sweden, Sara Riggare.
I had written on her excellent blog, telling her about
a friend that had Parkinsonism, that was, basically, in denial. And she extended to me, an email to tell my friend to write to her.
That is powerful. No one likes to be alone. Now, with the support of groups like Sara’s, and the internet, you don’t have to be alone, with any illness like Parkinsonism. My friend does not have to be alone, and can
communicate with a support group, to answer doubts, questions, possible referrals, and general conversations, that probably only Parkinsonism patients would understand.
Here’s a video of Sara from Jan 2013, entitled “Who Knows Best”